uodsp: FW: I would like to share this information with you!

Heidi von Ravensberg hvr at uoregon.edu
Mon Apr 20 10:45:26 PDT 2020


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From: agapasm at agapasm.com.br <agapasm at agapasm.com.br>
Sent: Sunday, April 19, 2020 8:16 AM
Subject: I would like to share this information with you!

Hello my dear friends!

I would like to share this information with you:

We have just published at the main page of Agapasm's webpage www.agapasm.com.br<https://urldefense.com/v3/__http:/www.agapasm.com.br__;!!C5qS4YX3!UXRSK3Cfp9c1qORTAIhl_xLHJ9FhEcazPx2o-zovR3-PNN1DNyolaNYOac7indY$> the following: "COVID-19 Information Resource Centre - EURORDIS" and "Recommendations to protect people living with a rare disease during the COVID-19 pandemic"! Please visit our Agapasm's webpage and share it!

Read more!

Conference on Rare Diseases & Orphan Products 2020! www.eurordis.org/news/participate-online-european-conference-rare-diseases-orphan-products-2020-14-15-may<https://urldefense.com/v3/__http:/www.eurordis.org/news/participate-online-european-conference-rare-diseases-orphan-products-2020-14-15-may__;!!C5qS4YX3!UXRSK3Cfp9c1qORTAIhl_xLHJ9FhEcazPx2o-zovR3-PNN1DNyolaNYOnYIhnV8$>

RDI 6th Annual Meeting! www.rarediseasesinternational.org/rare-diseases-international-6th-annual-meeting/<https://urldefense.com/v3/__https:/www.rarediseasesinternational.org/rare-diseases-international-6th-annual-meeting/__;!!C5qS4YX3!UXRSK3Cfp9c1qORTAIhl_xLHJ9FhEcazPx2o-zovR3-PNN1DNyolaNYOBZxDdps$>

No time to lose: Building a data strategy for the European Reference Networks - A EURORDIS contribution! www.eurordis.org/publication/no-time-lose-building-data-strategy-european-reference-networks-eurordis-contribution<https://urldefense.com/v3/__https:/www.eurordis.org/publication/no-time-lose-building-data-strategy-european-reference-networks-eurordis-contribution__;!!C5qS4YX3!UXRSK3Cfp9c1qORTAIhl_xLHJ9FhEcazPx2o-zovR3-PNN1DNyolaNYOOiLuqXM$>

The Global Orphan Drug Conference and Expo! www.terrapinn.com/conference/world-orphan-drug-congress-usa/index.stm?_ga=2.140203827.1419500650.1565785745-1055726661.1565785745<https://urldefense.com/v3/__http:/www.terrapinn.com/conference/world-orphan-drug-congress-usa/index.stm?_ga=2.140203827.1419500650.1565785745-1055726661.1565785745__;!!C5qS4YX3!UXRSK3Cfp9c1qORTAIhl_xLHJ9FhEcazPx2o-zovR3-PNN1DNyolaNYONA2EnHM$>

List of the latest marketing authorisations and orphan medicinal products designations! www.eurordis.org/orphan-drug-designations-marketing-authorisations<https://urldefense.com/v3/__http:/www.eurordis.org/orphan-drug-designations-marketing-authorisations__;!!C5qS4YX3!UXRSK3Cfp9c1qORTAIhl_xLHJ9FhEcazPx2o-zovR3-PNN1DNyolaNYOJOVEMps$>

Regards! Alex Garcia!

Alex Garcia - History on the Rare Disease Day website!<https://urldefense.com/v3/__https:/www.rarediseaseday.org/stories/6694__;!!C5qS4YX3!UXRSK3Cfp9c1qORTAIhl_xLHJ9FhEcazPx2o-zovR3-PNN1DNyolaNYO57QytkQ$>

Alex Garcia - History on the RareConnect website!<https://urldefense.com/v3/__https:/www.rareconnect.org/en/posts/cea5feec-04e8-481b-85ff-325876df130d__;!!C5qS4YX3!UXRSK3Cfp9c1qORTAIhl_xLHJ9FhEcazPx2o-zovR3-PNN1DNyolaNYOZt_xMmg$>




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