uodsp: FW: Rare Disease Day 2020!

[Heidi von Ravensberg]

Key Terms: rare disease, international, raising awareness, equitable access, advocacy campaign, statistics, research.


From: agapasm at agapasm.com.br <agapasm at agapasm.com.br>
Sent: Monday, February 17, 2020 11:10 AM
Subject: Rare Disease Day 2020!

My dear friends!

Soon we are celebrating the Rare Disease Day 2020.

I, Alex Garcia, am a person with rare disease and every  year  I share information about our movement.

Below you can read a PDF file with much information:

http://download2.rarediseaseday.org.s3-eu-west-1.amazonaws.com/2020/infopack-2020.pdf<https://urldefense.com/v3/__http:/download2.rarediseaseday.org.s3-eu-west-1.amazonaws.com/2020/infopack-2020.pdf__;!!C5qS4YX3!SP_FV4YXlL1fe7INmh9G6WNTo_HlB9pxGC8w27MgzQDLhTp6R_1dnz8LYBd7PJw$>

And in this PDF file, I highlight equity. I liked it a lot because equity is exactly what we, People with Rare Disease, try to achieve the most and need.

And I chose equity to fight.

http://download2.rarediseaseday.org.s3-eu-west-1.amazonaws.com/2020/Factsheet_Advocating%20for%20equity.pdf<https://urldefense.com/v3/__http:/download2.rarediseaseday.org.s3-eu-west-1.amazonaws.com/2020/Factsheet_Advocating*20for*20equity.pdf__;JSU!!C5qS4YX3!SP_FV4YXlL1fe7INmh9G6WNTo_HlB9pxGC8w27MgzQDLhTp6R_1dnz8Lqg__P8k$>

You can see the logo for this year''s celebration.

[LOGODRLEVE.jpg]

Please share this message.

Thank you and we'll keep in touch!

Alex Garcia - Brazil.

www.rarediseaseday.org<https://urldefense.com/v3/__http:/www.rarediseaseday.org/__;!!C5qS4YX3!SP_FV4YXlL1fe7INmh9G6WNTo_HlB9pxGC8w27MgzQDLhTp6R_1dnz8LQGoSdQE$>

http://www.agapasm.com.br/english.asp<https://urldefense.com/v3/__http:/www.agapasm.com.br/english.asp__;!!C5qS4YX3!SP_FV4YXlL1fe7INmh9G6WNTo_HlB9pxGC8w27MgzQDLhTp6R_1dnz8L5zTZ0EI$>

www.agapasm.com.br<https://urldefense.com/v3/__http:/www.agapasm.com.br/__;!!C5qS4YX3!SP_FV4YXlL1fe7INmh9G6WNTo_HlB9pxGC8w27MgzQDLhTp6R_1dnz8LpBHCckU$>

www.rarediseaseday.org<https://urldefense.com/v3/__http:/www.rarediseaseday.org/__;!!C5qS4YX3!SP_FV4YXlL1fe7INmh9G6WNTo_HlB9pxGC8w27MgzQDLhTp6R_1dnz8LQGoSdQE$>


-------------- next part --------------
An HTML attachment was scrubbed...
URL: <http://lists-prod.uoregon.edu/pipermail/uodsp/attachments/20200217/e7f43c68/attachment-0001.html>
-------------- next part --------------
A non-text attachment was scrubbed...
Name: image002.jpg
Type: image/jpeg
Size: 24505 bytes
Desc: image002.jpg
URL: <http://lists-prod.uoregon.edu/pipermail/uodsp/attachments/20200217/e7f43c68/attachment-0001.jpg>